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By: Amy Martin | AFAA Editorial Contributor
Every year, summer break comes to an end and food allergy parents get anxious. Along with packing school supplies, we dutifully assemble emergency kits with antihistamines and epinephrine. In additio
Every year, summer break comes to an end and food allergy parents get anxious. Along with packing school supplies, we dutifully assemble emergency kits with antihistamines and epinephrine. In addition to the set (or two) we send off to school, we keep another set at home or for after school child care. Depending on insurance, these double packs could cost nothing…or up to $300 each.

Because of cost, many families are forced to make the choice to carry beyond the yearly expiration or to even go without necessary life-saving medication. In some cases, parents will even divide up a set of injectors despite the fact that the The American College of Allergy, Asthma and Immunology recommendation to always carry two in case one fails or a secondary reaction occurs.

For us, in addition to epinephrine, my son also needs a preventative inhaler which our insurance only covers under our incredibly high deductible. Nothing has ever punched me in the gut harder than when I realized I couldn’t afford my son’s medically necessary medications. Obviously, he could not go without, but what would our family go without in order to pay for them? With three epinephrine sets expiring at the same time and this new preventative inhaler prescription,  I had to find a way to minimize the cost. As medicine and insurance costs rise and coverage declines, I highly doubt we are alone in our dilemma, so here are some tips that worked for our family that hopefully help others.

1. Coupons

The simplest and most popular way to save is to use coupons found on the pharmaceutical company’s website or even given to you by your allergist. Both Epi-Pen and Auvi-Q have $0 copay cards which cover up to a maximum of $100. For those whose copays are under $100, the injectors can be possibly be free. Check your coverage to determine how many injector sets are covered.

2. Income-based plans through drug manufacturer websites 

Both Auvi-Q and Epipen have income-based discount programs that could potentially cover epinephrine costs for an entire year. Each company has different guidelines, so watch carefully. If you still struggle but don’t meet all the requirements, try calling. Sometimes customer service can assist you in your application and even let you know if an appeal filed after a denial would be accepted.

https://www.auvi-q.com/prescription-coverage 

https://www.epipen.com/en/resources/paying-for-epipen

3.   Samples from your doctor’s office

Doctors are wooed by pharmaceutical companies with a supply of samples to hand out to patients as they see fit. I personally have never asked or been offered epinephrine, but we have received asthma inhaler samples that have saved us considerable amounts of money. 

*All advice is based on personal experience. Your experience may be different based on insurance coverage and income. 

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Amy Martin is a gypsy at heart, with the soul of an entrepreneur and the real, everyday life of a wife, mom, realtor, blogger and food allergy conquistador. She guest blogs and volunteers for AFAA. You can check our her personal blog at www.barefootnpearls.com or find her on Instagram as BarefootinPearls.

 
 
By: Lilliana DeSantiago Cardenas | AFAA School Epinephrine Advocate & Editorial Contributor
With the passage of SB 1421 allowing school districts to provide stock general use epinephrine for emergencies it is important that we understand what this means.
Exciting times are here; our children are off to a new school year.  Unfortunately these are also times of anxiety and fear for many families. With the passage of SB1421 allowing school districts to provide stock general use epinephrine for emergencies it is important that we understand what this means.  Also what we can do while schools in AZ become more competent on Food Allergies, Anaphylaxis and how to help our children either with their own epinephrine or with stock.

  1. Most schools will not have stock epinephrine available this year.  By law they are only required to stock if funds have been allocated via the annual budget.  Schools may opt to purchase these through their own funds.  Check with your schools.
  2. Stock epinephrine should never take the place of your child’s prescribed epinephrine.  Bring your child’s prescribed medication to school, make sure it is not expired, label it clearly and provide clear and detailed information to all classroom teachers, aides, and any other adults that will work with your child during the school day on how and when to use it. 
  3. Be prepared and communicate, 504 Plans are essential if your child has food allergies that lead to anaphylaxis. They not only provide information and guidance on how and when to help your child, but it is a legal and binding document that is developed in agreement with school administration, teachers, and parents.   504 Plans also provide you the leverage you need to ensure that necessary accommodations are made in regards to food, medication access, and class room environment.  Also if there are violations to the 504 Plan it is much easier to take legal action and hold people accountable.  Some schools may challenge your child’s ability to carry their epinephrine if there is not a 504 Plan and information outlining your child’s condition and medication requirements.  Make sure you check in with your school administrator and nurse about this.
  4. Share training resources on how to administer epinephrine to all adults who work with your child: http://www.arizonafoodallergy.org/administering-epinephrine.html The thought of injecting epinephrine is scary for most people.  Ease concerns through education and practice with demos.
  5. Be a team! Work with the school as much as possible and understand that they are afraid too. Schools are set up to be educational institutions not healthcare providers so this is totally out of their comfort zone.  They don’t want to put your child in danger.  The more you work with them in a patient and respectful manner, the more responsive they will be.  They need to be educated on the issue, treatment, risks, and emergency management.  The more they understand that the danger is in the lack of responding vs giving someone epinephrine the more they will become comfortable and willing to help.
My experience working with schools for over 8 years on asthma, food allergies, and diabetes is that they want to help, but they don’t really know how.  They are scared and don’t want to get into legal troubles. They don’t want to hurt your child and they sure don’t want a tragedy on their hands.  Education and awareness is key and the way to achieve this is through collaborative partnership between parents, students and school.